Family Support Research and Training Center contributes to first-of-its-kind study on rare disease caregiving
The National Alliance for Caregiving has released a report titled, "Rare Disease Caregiving in America, " a national study of 1,406 unpaid caregivers ages 18 and over living in the United States who provide care to a child or adult with a rare disease or condition.
The Family Support Research and Training Center was one of the partners on this very important report.